Starkweather Family

In light of everything he endures living each day with Prader-Willi, Ethan maintains a remarkably contagious positive attitude. With the help of his parents and older brothers, Jared, 15, and Ryan, 13, Ethan maintains a healthy weight, is in a traditional 4th grade class in school, and is a "poster child" for how a child can progress with this disease. After the national Make-a-Wish foundation granted his wish to visit Walt Disney World, Ethan made it his mission help other Make-a-Wish children with life threatening illnesses reach their goals. As an ambassador for his local Make-a-Wish chapter in Tulsa, he is working to shed light on Prader-Willi syndrome and has also raised thousands of dollars to help grant wishes for other local children. Because Ethan will never be able to live on his own, his current home needs to provide him the things he needs to thrive. Now it's up to the "Extreme Makeover: Home Edition" team to build a new home that will allow Ethan and his family to manage this disease and continue to help others who are living with Prader-Willi syndrome as well.